Family of 23 Loses Youngest to Rare Disease

Family of 23 Loses Youngest to Rare Disease

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By Rudabeh Shahbazi

RICHLAND-- A couple is pushing through the pain of losing their youngest child with the help of their 20 other children.

Mike and Julee Feser's son Jonathan had Aplastic Anemia, a disease that only affects one in millions of children. The two-year-old passed away Thursday in his parents arms.

"Right up until he just got so sick and so weak that he just couldn't wake up anymore, he was always still ready for a smile and a hug and a cuddle," said Julee.

Everything about Jonathan was extraordinary, especially his family. The Fesers now have 20 kids, most of them adopted special needs children from abroad.

They've adopted from Ethiopia, China, Vietnam and South Africa. Baby Jonathan was a beautiful surprise from Tacoma when he was one day old.

"I always feel like he's the sprinkles on the frosting of my cupcake of life," said Julee. "Just this gift that we didn't do anything to deserve, that we didn't plan."

Jonathan had Down Syndrome, but the Fesers say that was a blessing.

"There's no better quality of life than someone like him, that's happy, that doesn't worry, that always has his mind full and has an enormous capacity to love," said Julee.

Last year Jonathan was diagnosed with Aplastic Anemia, a very rare disease that shuts down the body's blood cells and platelets.

Then, in March, the Fesers found a ray of hope. Somewhere in America, a healthy male donated bone marrow that matched Jonathan's.

"It was March 14, and that will always be like a second birthday for me because it was a chance for life," said Julee.

But the excitement was short-lived. Jonathan contracted pneumonia and became too weak to fight it off. He passed away Thursday.

"We look at his pictures and we listen for his voice," said Mike Feser, Jonathan's father. " We listen for him and he's not in his crib. Not seeing him, that's hard."

This isn't the first time Julee has gone through the pain of losing a child, and she knows with her kids' conditions, it probably won't be the last. In this household, the children live with cancer, cerebral palsy and amputations.

"I've seen children die all by themselves and they didn't have a mom and dad to love them," said Julee. "That's why with Jonathan I was so thankful that he had us and we loved him and he knew that."

As for adopting more children, the Fesers say they would never turn down a child who needed them. But for now, they have to focus on the ones they have.

A memorial service will be held for Jonathan on Tuesday at Westside Church in Richland.
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